2021 Patient & Caregiver Support Group Member Survey
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Please take a few moments to let us know about your experience with the CLL Society Patient & Caregiver Support Group. Your feedback will allow us to demonstrate the value and impact of these groups, and call attention to ways in which we can improve the experience for you and other members of the CLL community. Thank you in advance for your time.
The primary CLL-specific Support Group I attend is:
-- Select --
Atlanta Metro CLL Support Group
Boston CLL Support Group
Central Florida CLL Support Group
Central Massachusetts CLL Support Group
Chicago CLL Support Group
Cincinnati CLL Patient Support Group
City of Hope CLL Support Group
Denver CLL Support Group
DFW – Dallas Area CLL Patient Support Group
Fort Lauderdale CLL Support Group
Houston-area CLL Support Group
Long Island CLL Support Group
Milwaukee CLL Support Group
Montreal CLL Support Group
Nashville CLL Support Group
New Jersey CLL Patient Support Group
New Orleans and Surrounding Areas CLL Support Group
New York City CLL Support Group
Northeast Ohio CLL Support Group
Oberlin, OH, CLL Patient Support Group
Orange County CLL Support Group
Orlando CLL Support Group
Philadelphia CLL Patient Support Group
Portland CLL Support Group
Raleigh Area CLL Patient Support Group
Rochester NY CLL Support Group
Rockland County NY CLL Support Group
Sacramento CLL Patient Support Group
Salt Lake City CLL Support Group
San Diego CLL Society Support and Education Meeting
San Francisco area CLL Patient Support Group
Seattle and All Points North CLL Support Group
Seattle-Olympic Peninsula CLL Support Group
Suncoast CLL Support Group (Sarasota)
Toronto CLL Support Group
Twin Cities CLL Support Group
Washington DC-area CLL Support Group
West LA CLL Support Group
Western North Carolina CLL Patient Support Group
Physicians with CLL Support Group
If you attend more than one Support Group, please select the other Support Groups below:
Atlanta Metro CLL Support Group
Boston CLL Support Group
Central Florida CLL Support Group
Central Massachusetts CLL Support Group
Chicago CLL Support Group
Cincinnati CLL Patient Support Group
City of Hope CLL Support Group
Denver CLL Support Group
DFW – Dallas Area CLL Patient Support Group
Fort Lauderdale CLL Support Group
Houston-area CLL Support Group
Long Island CLL Support Group
Milwaukee CLL Support Group
Montreal CLL Support Group
Nashville CLL Support Group
New Jersey CLL Patient Support Group
New Orleans and Surrounding Areas CLL Support Group
New York City CLL Support Group
Northeast Ohio CLL Support Group
Oberlin, OH, CLL Patient Support Group
Orange County CLL Support Group
Orlando CLL Support Group
Philadelphia CLL Patient Support Group
Portland CLL Support Group
Raleigh Area CLL Patient Support Group
Rochester NY CLL Support Group
Rockland County NY CLL Support Group
Sacramento CLL Patient Support Group
Salt Lake City CLL Support Group
San Diego CLL Society Support and Education Meeting
San Francisco area CLL Patient Support Group
Seattle and All Points North CLL Support Group
Seattle-Olympic Peninsula CLL Support Group
Suncoast CLL Support Group (Sarasota)
Toronto CLL Support Group
Twin Cities CLL Support Group
Washington DC-area CLL Support Group
West LA CLL Support Group
Western North Carolina CLL Patient Support Group
Physicians with CLL Support Group
Please answer all questions, whether or not you are the patient.
Concerning Living with CLL/SLL:
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I am more comfortable with my or the patient’s CLL diagnosis since attending my local CLL Society Support Group.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I feel more supported by a new network of friends whose lives also have been touched by CLL since attending my local CLL Society Support Group.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
Concerning CLL Knowledge and Management:
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I am more knowledgeable about CLL since attending my local CLL Society Support Group.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I am more involved in my or the patient’s CLL management since attending my local CLL Society Support Group.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I have changed the management of my or the patient’s CLL since attending my local CLL Society Support Group (i.e. different testing, treatments, or treatment teams).
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
Concerning the Primary Local CLL Society Support Group:
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I would recommend my primary local CLL Society Support Group to other CLL patients and families.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I am pleased with the leadership and facilitation of my primary local CLL Society Support Group.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
CLL Society is considering launching one or two CLL-focused support groups that are organized around a shared characteristic, interest, or treatment in addition to the support groups organized by geographic location in 2022.
I would be interested in the following CLL-focused support group meeting; please select all that apply:
Caregivers
Living Alone or Without a Caregiver
Younger Patients & Caregivers (55 years old or younger)
Watch and Wait (active observation)
Aggressive CLL / Richter’s Transformation
Clinical Trials / Experimental Treatments
I am not interested in any of these options
Other, please specify:
What webinar topics would you be interested in CLL Society hosting?
Which best describes your role with CLL? Please select all that apply:
CLL patient
Caregiver to a CLL patient
Loved one of CLL patient (but not the primary caregiver)
Healthcare professional
Prefer not to say
Other, please specify:
What is your age?
What is your gender?
Male
Female
Non-binary / third gender
Transgender
Prefer not to say
Prefer to identify as:
Please specify your race and ethnicity; select all that apply:
White or Caucasian
Hispanic or Latino
Black or African American
Asian or Asian American
Indigenous, First Nation, American Indian or Alaska Native
Native Hawaiian or Pacific Islander
Don’t know / Not sure
Prefer not to say
Which of the following best describes the area you live in?
Urban
Suburban
Rural
Prefer not to say
What is your current caregiver status?
I am or have a live-in caregiver
I am or have a caregiver that lives nearby
I am or have a caregiver that lives far away (requires plane ride or long drive)
I don't have a caregiver
Don’t know/Not sure
Prefer not to say
What is your or the CLL patient’s status of treatment for CLL?
I have not had treatment (also referred to as treatment naïve or watch and wait)
I am currently being treated for the first time or I have completed my first treatment
I have had two or more treatments or am currently being treated for the second time
Don’t know/Not sure
Prefer not to say
Support Group meetings will continue to take place virtually as the threat of the COVID-19 pandemic remains. Please let us know how we could improve virtual support group meetings or any other comments or feedback you would like to provide. All survey responses are confidential, unless you would like to include your name with your response.
Confidential comments or feedback:
Full Name and Email Address (Optional):
Done
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